Circa 2 500 de pacienți diagnosticați cu 12 boli rare în R. Moldova: Peste 75,5 milioane de lei alocați de stat în anul trecut pentru tratamentul acestei categorii de bolnavi
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Cei circa 2 500 de pacienți diagnosticați cu 12 boli rare din R. Moldova au beneficiat, în anul trecut, de peste 75,5 milioane de lei de la stat pentru tratament, anunță Ministerul Sănătății vineri, când este marcată Ziua internațională a bolilor rare.
Mai mult de jumătate din acești pacienți care suferă de hemofilie, artrită juvenilă, hipertensiune pulmonară, epidermoliză buloasă, colită ulceroasă, diabet insipid etc. sunt copii.
Tratamentul medicamentos pentru mai multe boli rare, inclusiv pentru persoanele neasigurate, este acoperit din fondurile asigurării obligatorii de asistenţă medicală (AOAM), iar diagnosticarea persoanelor cu aceste maladii se realizează la Centrul sănătatea reproducerii și genetică medicală din cadrul Institutului Mamei și Copilului, precum și în alte instituții specializate de nivel republican
Pentru cazurile în care sistemul național nu dispune de capacități de diagnostic, în special la nivel genetic, instituțiile colaborează cu laboratoarele din străinătate.
Datele Ministerului Sănătății mai arată că, în anul trecut, din fondurile AOAM au fost alocate peste 36 de milioane de lei pentru medicamente compensate în condiții de ambulatoriu persoanelor cu maladii rare.
Prin Programul național privind bolile rare pentru anii 2024–2028, autoritățile și-au propus să crească, în următorii trei ani, cu 25% numărul maladiilor rare depistate și să majoreze cu 25% numărul de medicamente utilizate pentru tratarea maladiilor rare și reducerea ratei mortalității premature cauzată de aceste boli.
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